Blake's Journey

Blake Tyler James Fenton born on the 17th June 2011


''This blog is about a journey through pregnancy, finding out that our child would be born with a Cleft lip & Palate, and also coping with a rare pregnancy condition. Dealing with the everything that comes our way, as a family. Caring and supporting our beautiful son Blake... and his amazing big sister Tia, this blog has been written by me, Jemma Kathleen Fenton (was Paley) in the hope that it touches many peoples hearts as Blake has touched ours. My goal is to help raise
awareness and money, I hope to helps other parents going through the same situation.''
I am happy to support any parents out there you can contact me through email: brassbuttons@hotmail.co.uk

Thursday 8 January 2015

Tis' the season....

Hello Everyone

Firstly I would like to wish everyone a Happy New year, and hope you all had a fabulous Christmas. It has been a few months since my last post and its been pretty busy with the obvious build up to Christmas. I got my two to write a little letter to Santa and told them both they could ask for three items that they really want!
Tia wanted a new Tiny tears, Sky high Tink and Snow globe maker. Blake told me he really really wanted a giant Spiderman! Buzz Lightyear and a new toy moter bike. Seemed easy enough to me, doable items! thank god, I am pretty organized when it comes to Christmas, I like to get a bargain so I will source for the best price! This year we were again unable to visit family and friends in Yorkshire so it was just us again but we will probably be visiting in February in the school holidays something to look forward too.

Something very unexpected happened before Christmas which was quite a surprise for me and my family! My Half sister got in touch! Whom I have not seen in 16 years although our first meeting was for only 20 mins and was the first time we met. We discovered we have been living 43 minutes away from each other! It has been a lot to take in and has been very emotional, but we have lots to catch up on and we are very similar and been through similar experiences, a pleasant surprise to learn I was a Auntie! to four gorgeous girls and two boys four of them are teenagers now, so I feel a little sad I have missed out on them growing up, but we cant control the past its the future that matters and its great for the children to have gained family. It has been great getting to know each other and was lovely to have them all over for Christmas day evening!
Tia and Blake got to meet their new cousins!

At the beginning of November I met up with a lovely Lady whom is also a mother of a Cleft child We live close but in separate villages her Daughter is at grammar school and doing very well! it makes me feel good to talk and meet with others that are able to understand what we have to go through.
We had a great conversation and the second time we met I got to met her beautiful Daughter and she got to meet Blake I feel I have made a good friend! so thank you Pippa for joining me for coffee :) its important to have support and someone to talk to. There has been lots of debating on the Cleft lip & Palate group, which I think is good people should be aloud an opinion but people need to remember not everyone feels the same way everyone is different but we are all going through the same and we need each other :)

Blake's been doing good at Pre-School and made lots and lots of friends he even has made a best friend called Finley I think its mainly they have the same interest and love for Marvel and Disney Cars they are both very cute! I love that his Pre-School do long observations and write everything down Blake's had a few reviews and I know he his progressing normally just like any other child and developing well and getting on with other children hes super confident and interacts well with his peers. He brought home a lovely Christmas card that they all made a foot print and to hand prints to create a reindeer image it looks fab and they were turned into real cards! I was impressed. I also filled in the online form for Primary school application!!! I cant believe my Blake starts school soon!!! He is ready for it but don't know if I am..... where did my baby go?

We have managed to dodge most of the horrible bugs and viruses going round this winter, but me and Chris got a nasty virus that laid us both out for a whole day... I got it first then Chris few weeks later, Blake was lucky I don't think he caught it it is sometimes hard to tell with Blake he seems to just get on with it... but I think he would have told us if he had it Few weeks went by and not so much as a sniffle in the house! I though yes nobody is ill for Christmas.... boy was I wrong.

Tuesday before Christmas Eve we had to go into Salisbury to pick up gifts for our Friends children, that morning Tia came and told me she had a headache, I asked if she felt ill and she said no it was just a headache, so I got the kids breakfast and drinks, Tia seemed fine after that I assumed she must have been hungry and maybe dehydrated.
When we arrived at Salisbury and went straight to Smyths Toy store, Tia helped me pick the presents but by the time we got back to the car she said her head hurt again poor Tia I told Chris I would get her some Calpol from town as we needed few more bits, so we got everything we needed and headed home Tia said she felt better and she helped me wrap up the gifts!

We decided to go take the gifts to our friends then get back and have Dinner, on our second visit Tia didn't seem well I took her temp and it was normal but she was shivering and then sick :(
We thought it best to go home, five minutes from leaving my friends I heard a noise and turned round and saw Tia having a fit in the back of the car, I screamed at Chris to stop the car, ran to her, I wasn't sure and though maybe she had been sick and was chocking, I checked her air way there was no sick her air way was clear she was having some sort of fit,I tried to hold her head steady so she didn't hurt herself.

 I was terrified and just kept talking to Tia, telling her I was there and if she could hear me. Chris rang 999 and Tia must have been fitting for 20 mins when she stopped its like she wasn't even there there are no words that can express how I was feeling.We just kept shouting her name to keep her awake. Poor Blake saw it all and he was very scared for his sister, and actually asked if she was dead! which freaked me out, as it shocked me, thankfully a lady stopped to help and she kept Blake talking and kept his focus on her and not what was going on in the back of the car.

When the ambulance arrived they took her and put her in the back, took her temperature and it was over 40 nearly 41c so it had rapidly spiked in the five minutes from leaving our friends, they suspected a febrile convulsion and assured me she was going to be OK, but were going to take her in as the said she could have a viral infection. Chris took Blake to our friends house, we thought it would be better as we didn't get our dinner and new he would be hungry. It took Tia a couple of hours to finally come round, it must have really taken it out of her. The first thing she said was ''Mummy has Santa been?'' bless her she didn't remember any of it, what a blessing! they took us to Sarum ward in Salisbury hospital..... Strange thing was we were meant to be there with Blake on that day for the his second lip surgery that was cancelled.

We got the all clear as Tia was doing well the next day the Doctor told us it could happen again if she gets a high temp or it might not ever happen, so we will have to keep eyes on her if she becomes ill again and she even got a visit from Father Christmas and his elves!! we all got a gift as well Blake could not believe it! he talked about it all day long Tia was discharged, so we went home to celebrate Christmas Eve, We got Santa's pie and drink ready and Rudolph's carrot! Tia and Blake scattered Reindeer food on the garden path and had hot chocolate before bed. We were all worn out so getting them off to bed was no trouble. I didn't sleep well at all for few days as I kept having flash backs I really hope it doesn't happen again.

Christmas Day was Brilliant and the kids really enjoyed it we had lots of family time and cuddles they both loved there gifts from us and they got what they wanted from Santa ;) We got Blake a bumble bee transformer car don't think its left his side he loves it ! Tia got a tablet and think her fingers were stuck to it. My sister came round that evening which was great she gave me a cuddle needed after everything. kids enjoyed seeing their cousins again and Blake was impressed with his new batman costume! Tia got Anna's coronation dress she looks beautiful in it and looked like a Princess.

So this next year is hopefully going to be great, new family members, new friends, new adventures for the kids! fingers crossed. I would just like to say Thank you to the Lady that stopped and helped us we never got her name! and Thank you to Vicki and David and the girls for seeing in he New Year with us!
hello 2015!

















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