Biggest Smile in the world! :D: Baby Blake no more.... :(

Blake's Journey

Blake Tyler James Fenton born on the 17th June 2011

''This blog is about a journey through pregnancy, finding out that our child would be born with a Cleft lip & Palate, and also coping with a rare pregnancy condition. Dealing with the everything that comes our way, as a family. Caring and supporting our beautiful son Blake... and his amazing big sister Tia, this blog has been written by me, Jemma Kathleen Fenton (was Paley) in the hope that it touches many peoples hearts as Blake has touched ours. My goal is to help raise awareness and money, I hope to helps other parents going through the same situation.''

I am happy to support any parents out there you can contact me through email: brassbuttons@hotmail.co.uk

Friday, 5 April 2013

Baby Blake no more.... :(

Hello Everyone! well what can I say its been a few months since my last post, and I must say what a busy few months its been! There hasn't been any appointments or meeting just lots of family time. Blake has changed so much... my Baby Blake is no more :(

Blake has come leaps and bounds in a blink of an eye! he is saying lots of words and pronouncing them well, I believe his favorite word at the moment is 'doggy' every time where out and about and he see's one he points and shouts 'DOGGY' its very funny he loves walking by himself and I must say 'at the moment he is very well behaved' I though he would be a bit of a lad and run off and I would have to use the harness but he doesn't and my heart melts when he stands next to me and holds up his hand for me to take it. :)

Tia and Blake play really well together... but they do have the occasional 'argument' and it usually involves Tia's pram.... lol
Blake gets along with other children too and interacts really well with them its lovely to watch sometimes when I tell him off he makes this little noise! sort of like a 'hummf' he doesn't like being told NO....!
It's very hard not to laugh...but hes coming up to the 'terrible two's' and he has been introduced to the naughty corner!! haha... he is not keen so he will usually run for a cuddle to try get out of it.. very clever! but besides that hes doing brilliantly and I couldn't be more proud.

There has been lots of planning in the Fenton household as I will soon be a Fenton!!! We have been planning our wedding for a year now and its less than 6 weeks away! Tia is very excited to wear her 'princess dress' Blake will also be donning a Suit! same as Daddy.... So excited Me and Chris have been through so much in the 7 years we have been together. I couldn't ask for a better partner, father and soon to be Husband.

We have just spent a week in Yorkshire visiting friends and family although we were snowed in for nearly half of it! I spent time with my mum and my bridesmaids at a Spa Day which was amazing! and very much needed and we went out for a meal for my Hen... Chris and his friends watched football and went for some evening drinks. I had my dress fitting and we sorted the wedding cake! all in all it was a great week.

We are going to do a bit of fundraising for CLAPA at the wedding! we will have some display pictures of Blake before and after his surgery, and a nice big bucket for or guests to donate some pennies (pounds would be better ;) but hopefully we will raise some cash and more importantly Awareness...

wedding pics to come... ! have to show Blake to you all donning his suit! would be rude not too :)

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What is a Cleft?

A cleft is a separation or split in either the upper lip or the roof of the mouth (palate) or sometimes both. It occurs when separate areas of the face do not join together properly when a baby is developing in the womb.
The development of the face and the upper lip takes place during the fifth to ninth week of pregnancy.
Cleft lips and palates can occur on their own (non-syndromic) or are sometimes part of a wider series of birth defects (syndromic).
A cleft lip and palate is the most common facial birth defect in the UK. One in every 700 babies is born with a cleft. The type of cleft and how severe it is varies between children.

About Smile Train

Unlike many charities that do many different things, Smile Train's mission is focused on solving a single problem: cleft lip and cleft palate.

Clefts are a major problem in developing countries where there are millions of children who are suffering with unrepaired clefts. Most cannot eat or speak properly. Aren't allowed to attend school or hold a job. And face very difficult lives filled with shame and isolation, pain and heartache. Their clefts usually go untreated because they are poor – too poor to pay for a simple surgery that has been around for decades.

About Operation Smile

Founded in 1982 by Dr William Magee a leading plastic and craniofacial surgeon and his wife Kathleen Magee, a former nurse and clinical social worker, Operation .Smile’s team is driven by our universal compassion to care for children and give the gift of a smile. As an international children’s medical charity, the global partnerships we create in our work to provide free cleft palate and cleft lip surgery is long-lasting. The knowledge we share, the medical and professional infrastructure we build, all leaves a legacy that lives well beyond our medical projects and makes a lasting difference around the world

About my OC condition

Obstetric cholestasis (OC) is a liver disorder that occurs in around one in 200 pregnancies in the UK¹. Also referred to as intrahepatic cholestasis of pregnancy (ICP), it is a condition in which the normal flow of bile out of the liver is reduced. Chemicals in the bile called bile salts (also often referred to as bile acids) can then build up and ‘leak’ into the bloodstream. This causes affected women to have increased levels of bile salts in their blood.

OC is also characterised by itching, known as pruritus. The itching generally appears in the last three months of pregnancy but can appear sooner². It is of variable severity and can be extremely distressing for the mother. Both the raised bile salts and pruritus completely disappear soon after the birth and do not appear to cause
long-term health problems for mothers.

Several fetal complications have been reported in OC pregnancies. There is an increased risk of preterm delivery (both spontaneous and induced) and fetal distress. Some case studies have also reported stillbirth occurring near the end of pregnancy in women with OC². Therefore it is essential that the condition is recognised and treated in time.

At present, most obstetricians in the UK managing OC pregnancies deliver babies early, at around 37 or 38 weeks. This is done because it is thought that it may help prevent the possibility of stillbirth.

I have to say a massive thank you to everyone on the OC Support group on Facebook and i give out lots of LOVE to Jenny Chambers! Thank you all.